So I’m freaked out. Went to the ER cause I’ve been having abdominal pain and vomiting and lost 5 pounds in a week. They did a CT and found there’s not enough blood flow to my liver. She said it’s common after abdominal surgery. My blood work is all good. She’s calling my surgeon to see what he wants to do but has anyone else had this?
Around age 18 I ended up doubled over in pain that was radiating from my back and abdomen. (The pain had been going on for months as well as bloating to the point of looking pregnant)- I was young so I didn’t think anything was wrong with me.
The pain became unbearable and I decided to get to the hospital. When I arrived, I was told I was suffering from a blood clot in the portal vein, liver and spleen. At 18 years old I was put on blood thinners (Lovonox shots and Nadadol to minimize the built-up pressure. I was given a blood transfusion as well.
I had numerous banding done due to the bleeding esophageal varices that kept reappearing. My doctor decided about age 19 1/2 that daily blood thinning medication would no longer be necessary and we would continue with the banding of the esophagus as needed.
Although, the varices were being banded, I still ended up passing out about a year after stopping my medication. I was told I had a clot in my portal vein (again). My doctor reassured me that the banding was doing its job and things would be fine and we would continue with no medication.
While at work about a year later, I felt flu like symptoms and ended up at the walk-in clinic. I did not have the flu or anything else they were testing for, I went home and thought all was good. I woke up at night feeling very confused and I was almost blacking out. I went to go find my family but before I could do that, I ended up passing again.
When I made it to the ER everything seem normal to them, they actually insisted on sending me home. That was until, I met one doctor who refused to let them discharge me.
That night while in the hospital I was moved to their regular unit to be watched, and was supposed to be released the next day.
I woke up that morning and had to use the bathroom and I felt fine. Once I made it to the bathroom I began to black out again and became very nauseous where I called the nurse and while the nurse was on her way out of my room because there is not much for her to do, I began projectile vomiting blood.
I was moved to the critical care unit where I had a vein place in the carotic artery incase they needed to do an emergency blood transfusion. I was kept there for a while until they decided that their hospital is not equipped to do what they needed to do and I was sent to New York City.
While in NYC I was diagnosed with portal vein thrombosis (PVT) and had already been suffering with dvt and esophageal varicose.
After spending a... keep reading on reddit ➡
Hey all - glad I found this sub and wanted to share my story since it seems fairly rare in the DVT world. Very suddenly one night after dinner I experienced really bad pain in my stomach, but mostly in the upper center a few inches above the belly button. It felt like a hot brick, just a constant almost burning pressure. I even vomited. I’ve had plenty of stomach aches in life and this didn’t feel like anything I’ve had before and the placement was very odd. I thought it was a major attack of indigestion or heartburn.
Well, it wouldn’t go away. I couldn’t sleep at night. After two days of constant pain I went to urgent care and since it was a Saturday and their imaging place wasn’t open they sent me to the ER for an ultrasound. The ER decided on a CAT scan. They found what none of us were expecting, my portal vein (main vein that goes to the liver) was full of clots. Blood was getting through but it was pooling up along both walls. I was put on Xarelto with follow ups at a hematologist and vascular surgeon.
Two of the three doctors I’ve seen don’t think the pain was related, and one does. The pain went away very quickly after the Xarelto so maybe it was. DVT is unusual in this area in people with healthy livers. They don’t really know what caused it. I do have a slightly abnormally shaped artery close by that may contribute, it’s possibly an anatomical thing, that makes me more prone in that area. The vascular surgeon said being dehydrated can contribute, and I’m guilty of not being great at drinking water plus I’m on a diuretic. I am getting blood tests done to see if there are any blood related causes and I don’t have all those results yet.
It’s been scary...and I’m still at the beginning of the journey. Just taking it one day at a time. I feel too young to be dealing with this but I see many of you are younger than me even so that helps normalize it a little.
I have been on Eliquis since December 2019. Unfortunately, on February 7th I was admitted to the hospital after it was found that even after 2 months on Eliquis there was no change in the blood clot in the left portal vein. Further, I was also diagnosed with infarction of the liver and intussusception of the small bowel. They cannot do surgery, as 3 general surgeons have reviewed my case, and they all declined to do surgery, deeming it too high risk. I have been referred to The University of Alabama-Birmingham to see if there is any options there.
I have lost 20+ pounds since this has all happened. Intractable abdominal pain and my LFT's are persistently elevated.
Does anyone have a good ending to their portal vein thrombosis story???
I can never tell how to differentiate between these two. I feel like it has a very simple explanation but I just don't see it :/
I am a 29 year old female, Caucasian, 5ft7in, and 150 lbs. Recently had some upper right abdominal pain. I went to the ER. Turned out that the diagnosis was portal vein thrombosis and needed my gallbladder removed. Was in the hospital for 6 days for the gall bladder procedure and a Heparin drip. I don't have cirrhosis of the liver or any other liver disease.
Had a CT scan of the abdomen done as soon as I arrived at the ER. The left portal vein appears to be thrombosed with inhomogeneous enhancement of the left lobe of the liver and some periportal edema, age indeterminate. The main portal vein and right portal vein appeared to be patent. There was also a 3.5 cm x 1.5 cm lipoma in the right lower pelvis that was present within the small bowel that is inseperable from the right adnexa. They noted an intussusception of the small bowel (they seemed concerned about this too)
So after 6 days in the hospital, they discharge me with the blood thinner Eliquis. And I have follow-ups with several different doctors....but they never really told me why I had this blood clot. All they could talk about was that it was apparently rare in someone my age...especially someone without liver disease.
So my questions is... what is the best specialist for me to ask my most pertinent questions such as why I have this condition, is it going to go away, is it going to kill me, will I have to take these blood thinners for the rest of my life?
I got these three games ages ago on Steam, but had only beaten Portal 1. I have kids now and was looking for some G-rated-ish games that aren't Minecraft that they could watch me play through (they are 4 and 6 and don't really have the dexterity or coordination to play PC games on their own quite yet, but like to watch me and shout out ideas for what to do). After a few months, we have finally beaten Portal 2 and Antichamber. My 6 year old legit solved some of the Antichamber puzzles that I couldn't figure out. Portal 2 we were able to accomplish completely on our own. Antichamber ended up requiring just a few tips from the internets.
These games were really stunning and a ton of fun. The end of Portal 2 was particularly amazing I thought.
Is there anything else out there with a similar feel to either of these games?
P.S. Thanks for having this community. Once you are a parent, you have to be a patient everything. I have a feeling from here on out, I will be in this sub more and more looking for tips =)
Hi everyone! I came across this subreddit while researching lovenox but have not read anything on portal vein thrombosis. My 9 month baby has PVT with portal hypertension. It has been such a scary rollercoaster since he was diagnosed 4 months ago. I've been trying to find as much information about PVT/PH (blood clots, medication, therapy and experiences) as possible. If anyone has anything to add I'd love to have a chat!
I'm about 2/3 of the way through my first play through of The Turing Test and I'm enjoying it quite a bit.
As alluded to in the title, it is a puzzle game that plays similarly to portal. You start the game with a gun that can receive and shoot energy balls and you go from room to room completing puzzles.
One aspect I really love about this game is its atmosphere and story. It has a much more somber and mysterious tone than Portal and the story really pushes you onward.
I got the game previously on Games with Gold so there's a good chance it's in your backlog. If not, the game is pretty cheap anyways.
Thanks in advance.
It's weird defining a videogame as the "third best" of anything, but that's what comes to mind after having finished The Turing Test. It doesn't quite reach the brilliance of the Portal series in the story department, and the puzzles aren't quite as good head-scratchers as in The Talos Principle, but it's still a very well done first person puzzler with original puzzle mechanics, an interesting story with a couple of cool twists, and superb voice acting. It's not a genre defining game, and it will ultimately not blow your mind in what it does, but it's definitely worth a playthrough if you are fan of the genre.
It's also a bit on the short side, you can complete it all including optional puzzles in under ten hours; for me this is a plus, not a con, since my gaming time is limited and I don't have time for 100s hours long epics, but you may want to pick it up on a sale if you are overly concerned about value for your money.
Hi fellow survivors! I am so glad I found this community. I was diagnosed this week and hospitalized for portal vein thrombosis. I'm a 33/F with no known risk factors. I am thankful that it gave me abdominal pain or I wouldn't have known I had it. It even cut off some blood flow to my intestines. I am on coumadin, because this is apparently the only known blood thinner to effectively work with this. I will get genetic and other blood testing in several months. Feel free to reply with any insights or resources. The pharmacist showed me the Dr. Gourmet website that is amazing. I eat a lot of vegetables so it'll be interesting to see how this goes. I also workout a lot so I'm hoping this won't kill that to much.
Next week I'll be having RFA carried out on the left side of my liver (One smallish lesion) and then PVE to restrict the right lobe and trigger growth in the left lobe, with a view to a resection of almost the entire right lobe in a few weeks. I have Stage 4 bowel cancer with liver mets. Been through Folfox chemo with Avastin, then a bowel resection a few months ago.
Has anybody had this procedure done? Will I have much, if any, pain afterwards? My consultant has said I'll be very tired while the liver is regenerating. How tired is tired? On a scale of "I need a coffee" to "sleeping for 36 hours after every chemo session", where can I expect to be? Any tips or advice?
In my favour, I'm youngish, very healthy other than the huge cancer elephant in the room, have been able to exercise and put back on all the weight lost during chemo, and recovered quickly from the bowel resection. My medical team are great and very informative, but I'd love some real-life experiences!
Oh, I'm based in one of the Lands of the Free (Healthcare), so insurance and stuff doesn't come into it for me (yay!)
I remember she was doing it in Season 10, but then it kinda dissapeared. Did it ever get mentioned again? Wasn't that one of the reasons why she wanted to stay in Seattle?
What is the differential diagnosis in context of a shocked patient three days following a road traffic accident? Note that a laparatomy was performed which revealed no dead bowel but an avulsed narcotic kidney
So I am a MS2 and I work in the anatomy lab of my school a lot. I am in the process of writing a paper on this strange finding in one of the cadavers last semester. The Left Testicular Vein had it's normal drainage into the Left Renal vein but it also had a branch connecting it to the Inferior Mesenteric Vein. Unfortunately I cannot show a picture for confidentiality reasons.
I was wondering if any of the doctors of reddit have run into something like this or has anyone heard of this?
I went to the ER with a bloated abdomen and semi-severe pain thinking it might be appedicitis. CT scan showed swelling around the portal vein where it connects to my liver. I used Google, the results are confusing and scary. I lead a relatively healthy lifestyle. I don't use drugs, nor do I smoke. I very rarely drink alcohol and if I do, it's one or two shots for the whole night. I actually have low blood pressure and no family history of liver disease. I don't know what could be causing the swelling. Sorry if this post seems all over the place. It's 4 in the morning and I haven't been able to sleep.