Always take a photo of your medical prescriptions and keep them in a folder in album.Next time doctor asks for your medical history or in eye clinic someone wants your last eye power it comes handy.can be life saving for allergies in emergencies
This is just a word of advice for everyone so they can avoid what I’m going through right now. This may be common knowledge for many of you, but I was just a small child when I was diagnosed and my parents were entirely out of their element so we didn’t know what all we had to do.
I was diagnosed with Juvenile Idiopathic Arthritis as a toddler. I started seeing a rheumatologist regularly when I was four years old to get my joint inflammation under control, and to this day I do relatively well, with the exception of my eyes.
I never saw an ophthalmologist until a few years ago. My optometrist was aware of my condition but he never gave me a referral or told my parents to get me checked by an ophthalmologist.
When I was 18 I started seeing black spots (floaters) and it freaked me out so I went to the hospital. The hospital referred me to an ophthalmologist and they found that I had significant inflammation in my eyes.
It has been a few years since I started treatments for the inflammation in my eyes, and I have undergone three major surgeries. Unfortunately my eyes did not react well to the anti-inflammation treatments, and as a result, my intraocular pressures (IOP) got out of control.
I am only 22 years old and I already have optic nerve damage. I see two specialists for my eyes on a regular basis, I never miss a day of my medications, and I try everything I can to live a healthy life, but it’s out of my control at this point. All I can do from here on out is hope my doctors and I eventually find the perfection combination of medications for me.
I know this is a bit of a vent, but I think this is essential information for anyone with JIA or RA. Every day I wonder how my life would be if my eye doctor had simply referred me to an ophthalmologist when I was a child. Damage to the eyes is irreversible, so please make it a priority to keep them in check.
Having redness and itchiness in my eye after a few months of dupixent, wanting to get prescription eye drops should i see my dermatologist or an ophthalmologist ?
your peepers are priceless 2021!!!!!
Looking for an ophthalmologist in the area.
Bonus points if they also double as an optometrist or have staff that do.
I'm hoping by now, we have invented technology that does not involve blowing air into my eyes.
Anyone have recommendations for either side of the river? Or even warnings who to stay way from? What kinds of prices did you pay?
Thanks in advance!
Do I have to drive to syracuse, or is there someone in town?
Why not join the fight instead of being idle?
I have Independence Blue Cross so as long as the provider is good and accepts that insurance I am open to suggestions. Thanks guys!
More details: A recent trip to Florida prompted us to get blood tests for him. The last few years we have always had to carry him a lot when walking. We thought he would out grow it? But in Florida, he showed so much exhaustion, fatigue, and once again we were carrying him on walks. One morning he woke up with a sore ankle and limped for half the day but we thought maybe he sprained it.
After coming home the fatigue remained, c/o “legs hurting” continued, broke out in rash, and increasing stomach pains. His blood work came back ANA 1:640, negative Rh factor, and positive for celiac. They took bilateral knee x-rays that were negative. He had EGD and biopsies to rule in/out celiac in which the results came back positive for H Pylori infection with increased IEL in small intestine which Dr thinks is from H pylori infection not celiac. He just finished antibiotics for H Pylori infection and we just saw an ophthalmologist for his constant eye rubbing in which the Dr said he has dry eyes which isn’t common in kiddos and to keep rheumatology apt.
I decided to start a journal of all of his symptoms and pain with a face pain scale. And now with doing that I’m realizing his ankles “sting” (is what he says) often and occasionally mentions knees and one time neck. He loves to ride his bike, but still struggles running/walking and is always tired.
My question is, is while we wait to see rheumatologist (2mos away) should we push to order more tests through primary care Dr. to get a jump start on things or get x rays of ankles?
Also, (this is thinking way ahead) but should we start practicing swallowing pills?
I guess I’m feeling at a loss. I always assumed his legs hurting was growing pains or because he’s lower tone. Is “stingy” joints how it feels for arthritis? Any tips for keeping a log? At this point, I don’t notice any swelling.
Thanks for any support and feedback. It’s been a rough last several weeks.
Does anyone know of any good and cheap(ish) Ophthalmologists in Canberra?
For about 4 years I've had the most stubborn chalazion on my lower eye lid and I've been on the public waiting list for a hospital appointment for about 2, almost 3 years now. I'm hoping to get a call to make an appointment soon but at this point I'm so tired of dealing with the self consciousness and anxiety of what people think of me that I'm starting to wonder if just shelling out the cost is worth it . If someone has experienced this and knows a rough cost of the surgery could you let me know? But any help would be great, thanks!
I have been on diamox since early February (1000mg daily) and today is the day where I find out if my optic nerve swelling has improved. I am so nervous. I am hoping for good news today because I’m starting to not tolerate diamox well anymore. I’ve been getting a lot of shortness of breath and it’s freaking me out. I haven’t been able to finish what I’m doing at work or even shower without getting winded. I can handle the diarrhea, foot/hand numbing, and all that but not being able to breathe is where I absolutely draw the line. Hopefully I can discuss this with my ophthalmologist and he can get a hold of my neurologist about it since I emailed my neurologist about it and have received no response😑
crossing my fingers for good news today 🤞🏻
I'm posting this to ask if anyone has any exceptionally good experiences with, and can recommend, a good ophthalmologist in the Las Vegas area?
My husband got a CXL treatment/minor surgery in Italy almost a year ago. We are new in town, and it urges him to see an ophthalmologist for his check-up because with all this pandemic he delayed the visit. Also, he already went to the NHS GP, and we don't know when we're gonna have the call from a hospital; a whole month already passed and he supposed to have a check-up every 6 months.
Please, if somebody knows how to deal with this? He has a couple of private healthcare but we don't know how to use it (we called them but they say that kind of check-ups don't cover, as it's because of a pre-condition before he had the PH).
Thanks and excuse my English.
Hey guys, I’ve had visual snow since late June last year (HPPD) and had a visit a couple weeks ago to an ophthalmologist. She pretty much said to my face that there’s nothing I can do and I should just try to ignore it. I know that it’s not her specialty and she definitely doesn’t have any experience dealing with visual snow patients, but it still hit me pretty hard having a doctor say to my face that there’s nothing I can do. This caused my anxiety to shoot up (my worst symptom) resulting in pretty intense dp/dr for the past couple weeks. I willing to see if the nuero specialist might be able to help in some way but I’m very cautious that I might get another negligent answer sending me down the rabbit hole even further. Do you guys think it’s worth a try? Thanks for any tips! <3
Hi, I was having floaters in my left eye for the past year and a half which never got worse. I finally got to go to the ophthalmologist a few days ago (was studying abroad and pandemic made it difficult to go earlier).
Upon inspection, he informed me I have atrophic holes at the top of my retina which have "pigmentation" around them. He told me I should go to the retina specialist only because of my age (I am 26), but stressed I am fine and that the specialist will likely say the same thing, but it's just something that should be monitored. He also said I don't have to go immediately or anything, but when I can.
So, my confusion is, does the pigmentation around the holes imply it is "healed?" Am I understanding this correctly? I am guessing since I have not had any worsening symptoms (more floaters, flashes) for a year and a half now, it seems to be in a chronic state and relatively benign. Correct me if I'm wrong.
Moreover, are there any good habits I can take up / supplements I can take to ensure my retina is healthy as can be?
It is absolutely mind-blowing hearing testimonies about debilitating eye floaters for DECADES and yet EVERY single Ophthalmologist is completely incompetent and ironically blind to the needs of eye floaters. I can not help but think they have completely set back a cure for us for so long because of their insistence that what we have is completely normal and fine. I truly don't understand it. Every single one of these rubes will tell you the same thing "Well I have floaters and I got used to it". How the FUCK can these people whose entire speciality is EYES completely miss the mark on this and not understand what we have is an actual disability. All of their advice is absolute bullshit. "It will go away" this isn't even mildly fucking true for the majority of people who have one or two eye floaters. Every single person knows they can see it in the sunlight so why is it so hard to extrapolate from these fucking skinwalkers that the vitreous collagens may clump together to a debilitating degree? I truly don't understand it. Are they really all just clock-punching humps who are coasting by on their stupid fucking medical tools to justify paying them out the ass? I truly can not wait for automation to run these people off the planet and program a robot with an actual bedside manner. I read a post on here about a guy who went to FOUR different eye specialists who could not explain his Blue Field Entoptic Phenomenon until he made one single post on here and someone explained it to him within the day. Un-fucking-believable. They just kept taking his money and shrugging their shoulders. Not even bothering to do a simple fucking google search. I feel a burning hatred for them so much and they need to be held accountable somehow. Dr.Sebag seems to be the literally only eye care specialist even remotely interested in our situation and look at how much ground he has covered since VDM opened last year! One fucking guy!
I'm sorry for the stream of a conscious rant against these people but I seriously have fantasies about raking these people over hot coals because of their pure incompetence and laziness.
Hey. I've lurked on here for a while, finally made an acc to ask a question because I'm concerned about a couple of things. Nice to see other people that have the illness, though. I felt kinda alone when I got the diagnosis because I'm not really a typical patient for iih.
Anyway. I've been having trouble with a doctor of mine and I want to switch but I have a question. I go to a neuro-opthalmologist because he's the guy that diagnosed me. However, he's insanely rude and has been doing things like making fun of my weight (I'm not exactly skinny but I'm nowhere near as heavy as he'd have you believe, and I've actually lost a considerable amount of weight recently) and making fun of me for not knowing much about the disease I have. You know, the rare disease. I wouldn't be ranting if it was just one or two comments, but he's just constantly taking the piss in front of the entire room, which always includes fellows (doctors in training), which, by the way, he did not ask me about. I want to switch but as far as I know, he's the only specialist in my area that's a neuro-opthalmologist. Would a regular neurologist be okay? I've seen a couple of mentions of people just going to normal neurologists and then just an optometrist for their eyes. I'd like to do that. My eyes suck but they're not actively losing vision anymore and I don't think I need those fancy machines anymore anyway.
That was a little long, sorry. Thanks for reading. Sorry if I've accidentally violated a rule or something, it's my first post.
Title. Looking for a good ophthalmologist